
Hey all!!!!!! Hope you are feeling good!
I hope all of you are doing as great as I am. I have been having great success

on the 'storm' front. I don't know why.? It may be because I have lost some weight!!!
Hallelujah!!! I am feeling great, things are going well.
I wanted to let all of my migraine buddies (the ones with picky brains

, you all do who have migraines) know, if you don't already, that botox is nearing the end of its clinical trials. Now, if you do not get botox for your migraines already (or cervical dystonia, by the way it has already been approved for that!) you probably would not know
HOW BIG OF A DEAL THIS IS!!! Botox per session is between 900-3500 dollars.

(each session every 3 months) So this is sort of a big deal to get botox approved because that is a lot of money to most, our insurance pays for mine. THANK GOD! (my cost is 2000 every 3 months) So, it is nearing the end trails, and many docs who were skeptical in the beginning have seen the data and guess what.?..it is proving that it works. Now us with the 'picky brain' migraine disease, know that it works for some. There have been new finding that show why it does work and the 'why' part of it that I will go into on my next post for those of you that are up on medical lingo and that care to know. The new data was released
hmmm I want to say a couple of weeks ago. ( I will put the link up in my next post) VERY INTERESTING, for those that like neuro-science. Anyhoo, the reason I am posting this is because some are having to pay out of pocket, it they do not get this, they can't function. For those of you that this is putting a HUGE dent in your wallet I am so sorry. They first wanted us to pay for it as well, my hubby went round and round with the insurance and actually won. We are the lucky few. For those of you that are not able to get it (and it does work for you) because it is so expensive (and you need it to function) well just know my heart breaks for you. It truly is the equivalent of keeping meds from a cancer patient. Just know there should be light at the end of the tunnel!!!! No one deserves that. But it does look good that it should pass. It will be nice when there is a day that we just need to pay our 30 dollar co-pay for it.
FOR THOSE OF YOU THAT BOTOX DOES NOT WORK ON:Well, the new data came out about a feed back loop in the brain. That will be a part of my next post. It is truly interesting on why our brains get stuck in these 'migraine storms.' For me, I may be doing well for a couple of weeks and them

bam it happens. I am in a loop of migraine after migraine. I usually know what or who has triggered it. But like many of you, it feels like you are in a loop.
Anyway, I hope all you 'picky brains'

are feeling good. There
is hope. There
is a light at the end of the tunnel ( and no it is not the on coming train!). We are so lucky to have such wonderful neurologists working towards.. and finding a cure.!!!!!
Anyway, I hope you all have a perfect Friday! The weekend is here!!!! Wishing you the best.
Praying you are having a pain free day!
Liz